Mae is still doing pretty well! She seems to be pretty "normal" this week.
One not-so-good event that happened this week was that some of MaeLynn's medications went missing on Thursday. Andrew is pretty sure someone stole them, although who knows. He reported the incident and luckily MaeLynn was able to get what she needed through her hospice nurse and a very helpful pharmacy. So things are okay for now.
MaeLynn was able to get another project done...a wreath made of knotted ribbons. It turned out really cute. She loves to let those creative juices flow!
The kids and Andy seem to be doing okay, and everybody made it to sacrament meeting today, although MaeLynn had an anxiety attack halfway through and had to leave. It's so crazy to see a lady who usually LOVES to be with lots of people getting all antsy around large groups. I know it's frustrating to her, but there's not much she can do about it. She is pretty relaxed at home and when only one or two people are around, so that's good.
Hopefully she keeps having these good days! Thanks again for all the prayers going out for these guys!
Sunday, November 21, 2010
Wednesday, November 10, 2010
Wednesday November 10th 2010
Just wanted to let everyone know that the last couple of days have gone really well for MaeLynn! She's back to "normal"...as normal as she's been the last couple of months.
She's feeling positive, and today was able to go shopping for some new pants and cute boots. She was also able to get the craft project done that she started at Super Saturday last week. Today was a good day!
"Some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious ambiguity..." -Gilda Radner
She's feeling positive, and today was able to go shopping for some new pants and cute boots. She was also able to get the craft project done that she started at Super Saturday last week. Today was a good day!
"Some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious ambiguity..." -Gilda Radner
Sunday, November 7, 2010
Sunday November 7th
Well, things have been going about the same since I last posted. MaeLynn mostly sleeps. She has gotten a little more coherent in the last couple of days. I've been able to have fairly normal conversations with her over the phone yesterday and today.
Her parents and sister came into town for the weekend, and Andy was able to get out and do a little hunting. He said that he "got" an elk, but that they couldn't find it...so no elk meat this year. (I'm sure Mae is heartbroken :)
She told me tonight that she's glad he has things that he likes to do, but she hates that his hobbies take him away from her and home (he's also been doing quite a bit of fur-trapping in Franklin Basin). She says she feels like a high-maintenance girl in the "time" area. Especially right now.
MaeLynn was able to go to Super Saturday at her church for a little while yesterday. Unfortunately, she got really antsy after being there for only a few minutes, so her sister took her for a drive and then home. My guess would be that the anti-delirium medication is taking its toll on her...bringing on more anxiety attacks.
The upside is that when she does start feeling the anxiety creeping in, she can sleep it off. Ahhh..blissful sleep
So, who knows. There are some good things, some not so good things going on. She can use the oxygen whenever she feels like she needs it, and she doesn't use it ALL the time, so that's good, right?
Thanks again to everyone's help and prayers. We just keep swimming! (From Dory on Finding Nemo)
Her parents and sister came into town for the weekend, and Andy was able to get out and do a little hunting. He said that he "got" an elk, but that they couldn't find it...so no elk meat this year. (I'm sure Mae is heartbroken :)
She told me tonight that she's glad he has things that he likes to do, but she hates that his hobbies take him away from her and home (he's also been doing quite a bit of fur-trapping in Franklin Basin). She says she feels like a high-maintenance girl in the "time" area. Especially right now.
MaeLynn was able to go to Super Saturday at her church for a little while yesterday. Unfortunately, she got really antsy after being there for only a few minutes, so her sister took her for a drive and then home. My guess would be that the anti-delirium medication is taking its toll on her...bringing on more anxiety attacks.
The upside is that when she does start feeling the anxiety creeping in, she can sleep it off. Ahhh..blissful sleep
So, who knows. There are some good things, some not so good things going on. She can use the oxygen whenever she feels like she needs it, and she doesn't use it ALL the time, so that's good, right?
Thanks again to everyone's help and prayers. We just keep swimming! (From Dory on Finding Nemo)
Tuesday, November 2, 2010
Tuesday November 2nd
I called Andy tonight to see how the increase in Haldol was doing for MaeLynn. Unfortunately, it doesn't seem like it has helped at all.
When I called, Andy told me she'd been asleep most of the day, but that now she was up--attempting to eat dinner. She even asked to talk to me on the phone, but when she got on she spoke complete nonsense. I had quite a helpless feeling. I wanted to steer her to a normal conversation, but it just didn't happen. I know MaeLynn did NOT want to be like this, so I feel really bad for her. We'll see what tomorrow brings, but things are not looking up today. Sorry.
When I called, Andy told me she'd been asleep most of the day, but that now she was up--attempting to eat dinner. She even asked to talk to me on the phone, but when she got on she spoke complete nonsense. I had quite a helpless feeling. I wanted to steer her to a normal conversation, but it just didn't happen. I know MaeLynn did NOT want to be like this, so I feel really bad for her. We'll see what tomorrow brings, but things are not looking up today. Sorry.
Monday, November 1, 2010
Monday November 1st
It feels so crazy to be November already. It's now been about a year since MaeLynn was told she had 6 months to live.
She had a fun weekend/Halloween, and had a few good days before that. Unfortunately, yesterday and today she has declined quite a bit. Andy said she slept pretty much all day yesterday, and that when she was awake, she didn't make much sense. Today she slept a little less, but didn't make any sense when she was awake.
He found MaeLynn in the kitchen clutching some junk mail and telling Andy to, "Get Out!! I've never told you this, but I'm really a secret agent! They've found me, and now there's a bomb in the house...so GET OUT!" Andy told her that he could disable the bomb if she'd just hand him the envelope. So she did. Then he helped her get back in bed.
The hospice nurse is upping MaeLynn's medication for delirium, but as we've said before, the effects of the medicine will only be able to overpower the effects of the toxins building up in MaeLynn's body for so long...so there are no guarantees.
She's been drinking the usual amount of fluids, but hasn't had much of an appetite. She tells Andy that everything tastes salty. Even some of her Halloween chocolate! Now you know something isn't right if Mae won't eat chocolate!! (Loss of taste and eventually sight can be signs of liver failure.)
Keep praying.
She had a fun weekend/Halloween, and had a few good days before that. Unfortunately, yesterday and today she has declined quite a bit. Andy said she slept pretty much all day yesterday, and that when she was awake, she didn't make much sense. Today she slept a little less, but didn't make any sense when she was awake.
He found MaeLynn in the kitchen clutching some junk mail and telling Andy to, "Get Out!! I've never told you this, but I'm really a secret agent! They've found me, and now there's a bomb in the house...so GET OUT!" Andy told her that he could disable the bomb if she'd just hand him the envelope. So she did. Then he helped her get back in bed.
The hospice nurse is upping MaeLynn's medication for delirium, but as we've said before, the effects of the medicine will only be able to overpower the effects of the toxins building up in MaeLynn's body for so long...so there are no guarantees.
She's been drinking the usual amount of fluids, but hasn't had much of an appetite. She tells Andy that everything tastes salty. Even some of her Halloween chocolate! Now you know something isn't right if Mae won't eat chocolate!! (Loss of taste and eventually sight can be signs of liver failure.)
Keep praying.
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